Tag Archives: National Cancer Institute

Every 2 minutes?

Posted on September 18, 2021 by Team Captain

In our world, when something is considered to be rare, it usually denotes that it has value. Everyone would agree that the Hope Diamond and Leonardo De Vinci’s Mona Lisa, painted in the 16th century, is rare and very valuable. … Continue reading →

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Uncategorized, young adults | Tagged AT/RT, childhood cancer, DIPG, Ewings sarcoma, National Cancer Institute, neuroblastoma | Leave a comment

Fly Me to the Moon

Posted on January 25, 2016 by Team Captain

President Obama called for an end to cancer in his State of the Union Address to the nation this year. He tasked his own Vice President with the job and since then the buzz word “Moonshot” has offered renewed hope … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged #CancerMoonshot, breast cancer, Cancer Moon Shot, Cancer Moonshot, colon cancer, DIPG, drug development, information silos, Joe Baber, lung cancer, National Cancer Institute, NCI, President Nixon, President Obama, prostate cancer, State of the Union, Vice President Joe Biden, War on Cancer, White House | 2 Comments

#MoreThan4 NCI Email Exchange

Posted on March 20, 2015 by Team Captain

The National Cancer Institute recently sent a response to an email sent to them containing a selfie and a #MoreThan4 flyer. You may have received one. Below is the NCI email and our response. Thank you for taking the time … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged #MoreThan4, CCSS, Childhood Cancer Survivor Study, Children's Oncology Group, COG, National Cancer Institute, NCI, Pediatric MATCH Program, TARGET | 4 Comments

Five year cure, …really?

Posted on November 11, 2014 by Team Captain

Five-year relative survival rates describe the percentage of patients with cancer that are alive five years after their disease is diagnosed. Use of 5-year survival statistics is more useful in aggressive cancers that have a shorter life expectancy following diagnosis (such … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged American Cancer Society, autoimmune, biopsy, chemo, Cj Colton, clear cell sarcoma, CT, Ipilimumab, Joe Baber, kidney, MRI, National Cancer Institute, radiation, survival statistics, T-cells | 19 Comments

My Calling

Posted on October 8, 2014 by Team Captain

I came into the childhood cancer community in 2013 as a member of the “general public”, having no personal connection to a child with cancer. My journey is different but not without appreciation for what cancer is and how devastating … Continue reading →

Posted in Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged American Cancer Society, CAC2, carcinosarcoma of the uterus, chemotherapy, Coalition Against Childhood Cancer, Congressional Childhood Cancer Caucus, Laurie Orloski, National Cancer Institute, White House | 3 Comments

The Fault in Our Systems

Posted on July 29, 2014 by Team Captain

by Nathan Traller, Nathalie’s father Editor’s Note: Nathan’s daughter was diagnosed with Aveolar Soft Part Sarcoma (ASPS) two years ago and he has been fighting to get her into a possible life saving clinical trial for PD1 and PDL1. Time … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged 2.0 clinical Trials, ASCO, ASPS, Aveolar Soft Part Sarcoma, Bristol-Myers Squibb, Clinical Trials, Compassionate use, FDA, Genentech Inc., genomic profile, Lung MAP trial, Merck, metastatic cancer, Nathan Traller, National Cancer Institute, National Institutes of Health, NCI, NIH, PD1, PDL1, pediatric trials, rare disease, tumor bank | 3 Comments

Want to Make a Difference?

Posted on July 23, 2014 by Team Captain

Maybe, I am a little old-fashioned with my “mug shot” and in a few other ways, like this one: It is so amazing to me that in today’s “connected” world, there are so many people who you will work closely … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged #SaveJosh, Bill Burns, CAC2, Coalition Against Childhood Cancer, Laurie Orloski, Max Cure Foundation, National Cancer Institute, The Nicholas Conor Institute, TNCI | Leave a comment

Palliative Care

Posted on January 15, 2014 by Team Captain

About six years ago, the National Institutes of Health (NIH) announced it’s support for palliative care (pronounced pal-lee-uh-tiv) for adults and children suffering from serious illness. Today, 70% of Americans still do not know what it is. To be honest, for … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, young adults | Tagged American Cancer Society, Better Clinical Outcomes, Boston Children's Hospital, death, Dr. Joanne Wolfe, end of life, Get Palliatve Care .Org, hospice, Joe Baber, National Cancer Institute, National Institutes of Health, NCI, neuroblastoma, NIH, The New England Journal of Medicine | 7 Comments

Turn Foreign Aid into Cures for Cancer

Posted on January 2, 2014 by Team Captain

In 2020, the United States spent $51.05 billion on foreign aid ($11.75 billion in military assistance and $39.3 billion economic assistance) Foreign aid has been a hot topic ever since our country slipped into recession in 2008. On any given … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged DIPG, foreign aid, HIV/AIDS, Joe Baber, medulloblastoma, National Cancer Institute, NCI, neuroblastoma | 1 Comment

Let’s Push Buttons

Posted on December 5, 2013 by Team Captain

Would you believe?: 96% of all clothing sold is for adults. 96% of all breakfast cereals are consumed by adults. 96% of all bicycle helmets are worn by adults. 96% of all cancer research conducted by the National Cancer Institute … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged American Cancer Society, FDA, gold ribbon, Joe Baber, National Cancer Institute, NCI | 4 Comments

Advocacy and Direction

Posted on August 1, 2013 by Team Captain

Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged advocate, ALL, DIPG, HR 2019, Jonathan Agin, Kids First Research Act, Lobbyist, National Cancer Institute | 2 Comments

We Must Stop Turning Our Backs on Children’s Cancer

Posted on June 29, 2013 by Team Captain

When doctors told my wife and I that our soccer-playing, Harry Potter-reading 7-year-old daughter Olivia had cancer, we were struck with panic, dread and challenges we never could have imagined. And once we overcame the shock, we were stunned to … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Capitol Hill, Childhood Action Day, chronic side effects, Conquer Childhood Cancer Act, d d, federal budget, Food and Drug Administration, heart failure, life-theatening illnesses, National Cancer Institute, pharmaceutical industry, prostate cancer, secondary cancers, Stephen Crowley, therapies | 1 Comment

Welcome!

Posted on April 4, 2013 by Team Captain

Welcome to Four Square Clobbers Cancer! Four-Square Clobbers Cancer is a conversational blog that is dedicated to improving the outcomes of children, adolescents, and young adults who are being treated or have been treated for cancer. The goal is to inform, … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged acute lymphoblastic leukemia, adolescents, American Childhood Cancer Organization, asthma, AYA, blood cancer, BMT, bone marrow transplant, Brain Tumor, breast, cardiac arrest, chemotherapy, cognitive deficit disorder, Dana-Farber Cancer Institute, depression, die, disabling chronic healt problems, Ewings sarcoma, fatigue, genomic, gilomas, hearing loss, heart transplant, hospital, immune deficiency disorder, infertility, Kennedy Bougher, kidney transplant, Leukemia, life-theatening, lymphoma, medulloblastoma, memory issues, National Cancer Institute, NCI, neuroblastoma, osteosarcoma, PAC2, People Against Childhood Cancer, precision medicine, radiation, rhabdomyosarcoma, sarcoma, sequencing, solid tumor, survivor, toxic, tumor, vision problems, Wilms tumor, young adults | 1 Comment

Survivor

Posted on March 31, 2013 by Team Captain

Although everyone in our Childhood Cancer group is trying to survive, this contest is not like the TV game show where everyone is reasonably healthy and one lucky person wins a million dollars if they are the lone survivor. Every … Continue reading →

Posted in Childhood Cancer, Pediatric Cancer, Uncategorized | Tagged acute lymphoblastic leukemia, Acute Myeloid Leukemia, adolescents, American Cancer Society, American Childhood Cancer Organization, asthma, Astrocytoma, AYA, blood cancer, BMT, bone marrow transplant, bone tumors, Brain Tumor, breast, cardiac arrest, chemotherapy, cognitive deficit disorder, Dana-Farber Cancer Institute, depression, die, disabling chronic healt problems, Ependymoma, Ewings sarcoma, fatigue, genomic, gilomas, hearing loss, heart transplant, Hepatic, Hodgkin, hospital, immune deficiency disorder, infertility, Kennedy Bougher, kidney transplant, Leukemia, life-theatening, lymphoma, medulloblastoma, Melanoma, memory issues, National Cancer Institute, NCI, Neoplasms, neuroblastoma, NonHodgen, osteosarcoma, Ovarian germ cell, PAC2, People Against Childhood Cancer, precision medicine, radiation, Retinoblastoma, rhabdomyosarcoma, sarcoma, sequencing, solid tumor, survivor, Testicular germ cell, Thyroid carcinoma, toxic, tumor, vision problems, Wilms tumor, young adults | 4 Comments

Engaging the Pharmaceutical Industry – Part 1

Posted on March 15, 2013 by Team Captain

This is beginning of a four part series by Jonathan Agin, an attorney and well known childhood cancer advocate (www.jonathanagin.com) in Washington, DC. He is married to Neely Agin and is the father of Alexis, Gabriel Agin and Trevor Agin. Alexis was … Continue reading →