Missing Kylie by Mark Myers
51 Childhood Cancer organizations strong and growing!
" Never capitalize the word, "cancer." It does not deserve it. " Carson Leslie, 17
How my daughter embraced life with cancer as an unexpected adventure. Catie was just one of those unique people who had the ability to touch people and make them live a little more splendidly. This is Catie's story - and how she changed the world one brilliant moment at a time.
Click photo below to see The Truth365 Video
The book, "Grace" by Melinda Marchiano
Provide Chemo Ducks for Kids
Great for young school age kids
Tag Archives: AT/RT
As Our Children Wait – Part 1
Blissfully ignorant! That was us before our grandchild Declan was diagnosed with a childhood cancer called AT/RT. On diagnosis we were told that for Declan there was no hope — no cures, treatments, protocols. We were told this particular type … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease
Tagged AT/RT, Children’s Health Act of 2000, Donna Carroll Carmical, HHS, National Children’s Study, NCI, NCS, NIH
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Moving the Needle
Recently in Washington, D.C. there was a hearing to discuss the $30 billion 2016 budget requested by the National Institute of Health (NIH), these are our tax dollars at work. The largest of our childhood cancer organizations admirably raises tens … Continue reading
NIH Budget Priorities
Each decade we lose more than 27,000 children to childhood cancer, another 120,000 suffer impacts of treatments including secondary cancers. This picture has not improved much over the past 30 years and it will continue to change only incrementally, if … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease
Tagged acute lymphoblastic leukemia, AIDS, ALL, Alzheimer’s research, Antimicrobial Resistance, Appropriations Committee, AT/RT, Brain initiative, chemotherapy, Congress, Declan Carmical, DIPG, Dr. Francis Collins, Dr. William Carroll, federal research dollars, Health & Human Services and Education, hearing problems, heart problems, infertility, Labor, learning disabilities, National Cancer Institute, National Institues of Healt, NCI, NIH, Precision Medicine Initiative, secondary cancers, Senate, StandUp2Cancer, stunted growth
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