Tag Archives: childhood cancer

Lock up September 2017.

We all know that September is Childhood Cancer Awareness Month. It’s a 30 day period each year that is set aside for the children, or is it?. It’s a chance for us to make the world pay a little more … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , , , , , | 2 Comments

Why Motorsports?

Why is it important for the teams, drivers and fans of the motorsports racing communities such as NASCAR, NHRA, IndyCar, WoO, IMSA and others to display “Gold in September?” Because motorsports races are, as a whole, the No. 1 spectator … Continue reading

Posted in Cancer, Childhood Cancer, NASCAR, NHRA, Pediatric Cancer, Rare Disease, Sprint Cup, World of Outlaws | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Dear American Cancer Society

Dear American Cancer Society, Good evening. I have always been appreciative of the work and research that the American Cancer Society funds. While I have always researched the organizations I support, it was not until recently that I decided to … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , | 9 Comments

We need more than just research

A mother noticed that her six year-old son’s eyelids were not closing normally and when he walked, he was slightly off balance.  A few days later, his parents’ worst nightmare became a reality; they were told that their son has … Continue reading

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Epilogue -Childhood Cancer, My Road Map Series

Five weeks ago I set out to create what I think is part of the road map for the issues facing the fight against childhood cancer, and the areas I feel could provide gains on this road. The truth is, … Continue reading

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Bringing Us All Together – Part 4

From my earliest entree into blogging in my daughter Alexis’ journal, I learned quickly that the childhood cancer community was a very disorganized and dis-unified group of entities and individuals who all had the same ultimate goal: a cure. I always … Continue reading

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The Funding Conundrum for Pediatric Cancer

My grandson, at 15 months of age, was diagnosed with high risk neuroblastoma. He is a survivor.  Although, he  endured an incredible six year long journey, this story is not about him,  his family, the changes in their lives, or … Continue reading

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Give me a big bottle of that stuff!

About this time last year, I was working on forming a reunion of people who had worked at Roses Stores, a southeastern chain of discount stores. Out of the blue, I walked back into Marion, VA, a wonderful small town … Continue reading

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I’ll take second…

Lane Goodwin was known around the world for his struggle and the thumbs up attitude he displayed in his fight against cancer.  Unfortunately, Lane lost his battle in October of 2012.  When he died, he was only 13, and he … Continue reading

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Dear Mr. President…

Dear Mr. President: Monday January 21, 2013 marks the day you took the oath of office for the second time. Many challenges now face you as you are sworn in for your second and final term as President of the … Continue reading

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Effective Public Speaking 101

Want to spread the word about how rare childhood cancer is?  Even if you are afraid to talk in front of a group of people, you can do this without giving a big speech!  This is how to give an … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , | 1 Comment

Unity

The popular self-help author and motivational speaker, Tony Robbins, once said, “By changing nothing, nothing changes.” A simple statement yet shadowed with profound wisdom. Through immersing myself in the childhood cancer community, at the tender age of seventeen, I, Khadesha … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , | 5 Comments

Cancer Drug’s Valley of Death – Where is it, What is it?

To truly understand the problems with development of drugs specific to childhood cancer, and rare disease in general, examine the FDA’s Therapeutic Development Pipeline below.  The pipeline represents the normal development of an average drug.  The average successful drug will … Continue reading

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