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Recent Posts
- Two Little Words
- September 2018 in our Capitol
- Lock up September 2018.
- SU2C Funding Opportunities
- 4 TIMER
- Turn Away… You may not want to hear this
- How can a baby be a hero?
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- $30 million for AYA
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
- Open Letter to Congress
- As Our Children Wait – Part 4, Conclusion
- As Our Children Wait – Part 3
- As Our Children Wait – Part 2
- As Our Children Wait – Part 1
- Why Motorsports?
- Moving the Needle
- What Not to Say When There is Nothing to Say
- NIH Budget Priorities
- Texas Proud!
- #MoreThan4 NCI Email Exchange
- Father, Daughter, Date Night
- Immunotherapy
- Five year cure, …really?
- My Calling
- Fixing the Faults
- A Pair of Shoes
- Hope
- So, It Begins:
- September’s Child
- Update: Camp Can Do
- Giving It All
- September – #ChildhoodCancerChallenge
- Where are you now, Rock Hudson?
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The Truth 365 Video
If you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.Click photo below to see The Truth365 Video
Tag Archives: Coalition Against Childhood Cancer
My Calling
I came into the childhood cancer community in 2013 as a member of the “general public”, having no personal connection to a child with cancer. My journey is different but not without appreciation for what cancer is and how devastating … Continue reading
September – #ChildhoodCancerChallenge
This will be PAC2’s 7th September, aka National Childhood Cancer Awareness Month. Starting virtually unaware, except for the worst fact about childhood cancer, over the years we’ve learned that the research funding for all cancers is not the same, and … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized
Tagged #ChildhoodCancerChallenge, Bob Piniewski, CAC2, Coalition Against Childhood Cancer, Congressional Childhood Cancer Summit, CureFest, Dr. Francis Collins, john f. Kennedy, long term survival rate, National Cancer Awareness Month, National Institutes of Health, NCI, NIH, PAC2, People Against Childhood Cancer, Rep. Chris Van Hollen, Rep. Michael McCaul
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Want to Make a Difference?
Maybe, I am a little old-fashioned with my “mug shot” and in a few other ways, like this one: It is so amazing to me that in today’s “connected” world, there are so many people who you will work closely … Continue reading
30% Funding Cuts
Just weeks before she died of a brain tumor, ten-year-old Gabriella Miller put it best. When asked what message she would give to the nation’s political leaders about the need for children’s cancer research, she responded in a YouTube video … Continue reading
Gold vs Pink
“Knowing everything that I know about cancer, I would, in a heartbeat, take any kind of adult cancer—no matter how nasty and aggressive the disease and treatment—over any cancer diagnosis and any chemotherapy for either of my daughters, future grandchildren” … Continue reading