Tag Archives: Capitol Hill

So, It Begins:

Posted on September 24, 2014 by Team Captain

I have been actively engaged in the advocacy fight for more federal funding for childhood cancer since my first trip to Washington DC in June of 2008. This began less than 3 months after I lost my only son, Caleb, … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Capitol Hill, Congressional Childhood Cancer Caucus, CureFest, DC, Dr. Francis Collins, Dr. Harold Varmus, Lafayette Square, NIH, Office of Public Engagement, Rob Whan, Washington, White House | 5 Comments

We Must Stop Turning Our Backs on Children’s Cancer

Posted on June 29, 2013 by Team Captain

When doctors told my wife and I that our soccer-playing, Harry Potter-reading 7-year-old daughter Olivia had cancer, we were struck with panic, dread and challenges we never could have imagined. And once we overcame the shock, we were stunned to … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Capitol Hill, Childhood Action Day, chronic side effects, Conquer Childhood Cancer Act, d d, federal budget, Food and Drug Administration, heart failure, life-theatening illnesses, National Cancer Institute, pharmaceutical industry, prostate cancer, secondary cancers, Stephen Crowley, therapies | 1 Comment