Tag Archives: Jonathan Agin

The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?

On September 12, 1962 President Kennedy delivered his famous “moonshot” speech. Declaring that as a nation, we would focus vast resources to landing a man on the moon and safely bringing that man back to earth. It was ambitious and … Continue reading

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The Small Hero Amongst Us All

Editor’s Note: Jonathan Agin penned this piece two years ago for the Huffington Post. The only things that have changed since then are the additional faces of the small heroes each year. Each year, toward the middle of December, there … Continue reading

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The Exploitation of Childhood Cancer

You all remember that little government shutdown a handful of weeks back don’t you? The emotional press conferences held by members of Congress on both sides of the aisle talking about how children with cancer would not receive treatments at … Continue reading

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Friends Don’t Let Friends Relay

Editor’s note: Little has changed since Jonathan Agin penned this article for the Huffington Post in February, 2013.   There are many amazing charitable organizations focused upon cancer research and support. Most of us can rattle off the big ones … Continue reading

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Finding Your Footprints

Have you ever tried to walk behind someone in the deep snow and step right in their footprints?  As you take each step, you may or may not hit each plant right in the already trodden snow.  And then, coming … Continue reading

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Advocacy and Direction

Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the … Continue reading

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Mr. President, Did We Miss Your Call?

President Obama, perhaps you recall that back in January 2013 I reached out to you to talk about three specific small asks for the childhood cancer community. I know that you have had a lot on your plate recently. For obvious … Continue reading

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Lobbyist

Lobbyist… There, I said it! For me, it’s very difficult saying the “L” word. It never has felt good rolling around in my mouth, banging up against my molars and sliding out between my tight lips. I have always hated that … Continue reading

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End of Life Equality

Until we needed to enroll my daughter Alexis in a hospice program, I really had no idea how poorly we as a country manage the needs of children who face terminal diseases. Admittedly, having a conversation about children who face … Continue reading

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Adrift in the Waters of Childhood Cancer-Arguing to Change the Standard of Care

April 11, 2008 will always remain etched in my memory for one simple reason. It is the day that we heard the words “your daughter has cancer.” They are four of the worst words that a parent could ever imagine … Continue reading

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The Patient Choice Act – Providing Choice Instead of Death

I suppose I never truly realized how little choice we have individually with respect to selecting the drugs and treatments we as Americans pursue for own health. This never personally impacted me until the diagnosis of my two year old … Continue reading

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Epilogue -Childhood Cancer, My Road Map Series

Five weeks ago I set out to create what I think is part of the road map for the issues facing the fight against childhood cancer, and the areas I feel could provide gains on this road. The truth is, … Continue reading

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Bringing Us All Together – Part 4

From my earliest entree into blogging in my daughter Alexis’ journal, I learned quickly that the childhood cancer community was a very disorganized and dis-unified group of entities and individuals who all had the same ultimate goal: a cure. I always … Continue reading

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Federal Funding for Childhood Cancer Research – Part 3

This is part 3 of the Jonathan Agin series, “Childhood Cancer – My Road Map” Money makes the world go ’round. Or so we are told. Certainly for medical research, this is true. And, for the childhood cancer community, it … Continue reading

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The FDA and Childhood Cancer – Part 2

This is part 2 of the Jonathan Agin series, “Childhood Cancer – My Road Map” Being sent to an emergency room to have a CT scan performed on your two-year-old child is frightening. Being brought into a small cramped room … Continue reading

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Engaging the Pharmaceutical Industry – Part 1

This is beginning of a four part series by Jonathan Agin, an attorney and well known childhood cancer advocate (www.jonathanagin.com) in Washington, DC. He is married to Neely Agin and is the father of Alexis, Gabriel Agin and Trevor Agin. Alexis was … Continue reading

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Dear Mr. President…

Dear Mr. President: Monday January 21, 2013 marks the day you took the oath of office for the second time. Many challenges now face you as you are sworn in for your second and final term as President of the … Continue reading

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