Tag Archives: Laurie Orloski

CAVATICA Genomics Data Sharing

Posted on June 15, 2016 by Team Captain

Editor’s Note: CAVATICA completed Beta testing and went live on October 17, 2016. This is a huge step in the right direction to eliminate silos of data and enter a new world of data sharing. The complete story can bed … Continue reading →

Broken Trust

Posted on February 6, 2016 by Team Captain

I just can’t believe what I read the other day and what I am about to write about right now. This about trust—trust between patients and their healthcare providers. This is about trust that is being broken. What I read: … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged aminocaproic acid, Anesthesia and Analgesia, BCG, Beverly Smith, bladder cancer, Cleveland Clinic, Dr. Andrew Stephenson, Dr. Brian Fitzsimons, Dr. Eric Kodish, Dr. Ivan Hsia, Dr. Nicole Lurie, Drug Shortages, Fabry disease, Hodgkin’s lymphoma, intravenous nitroglycerin, kidney function, Laurie Orloski, Mayo Clinics, Merck, New York Times, registered pharmacist | 1 Comment

I Gladly Spoke Up for Kids With Cancer Today

Posted on January 22, 2016 by Team Captain

I spent a brrrrrr cold Thursday afternoon in Philadelphia, at a Cancer Precision Medicine Conference in Philadelphia, hosted by the American Association for Cancer Research (AACR) and the Philadelphia Media Network. It was the first time that representatives from 6 … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged ACCR, American Association for Cancer Research, bone marrow transplant, Cancer Precision Medicine, CAR T-cell, chemotherapy, CHOP, Devon Still, immunotherapy, Laurie Orloski, Leah Still, Leukemia, novel therapies, Philadelphia Media Network, Stephen Grupp, survivorship | 2 Comments

Immunotherapy

Posted on December 21, 2014 by Team Captain

I am not sure how many people outside of the cancer research community know this, but it is well recognized that the human body is equipped to fight off cancer on its own. The same immune system that we have … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged acute lymphoblastic leukemia, ALL CLL, American Society of Hematology, autoimmune disease, biotech, Bristol-Meyers Squibb, CAR, CAR T, CART, checkpoint inhibitor, chemotherapy, Children's Hospital of Philadelphia, chimeric antigen receptor, cytokines, DNA, Dr. Stephen Grupp, EGFG, FDA, Gardasil, HIV Aids, immunosupressive, immunotherapy, interferon, interleukins, Keytruda, Laurie Orloski, Leukemia, Melanoma, Merck, metastatic disease, molecularly targeted agents, New England Journal of Medicine, nivolumab, Novartis Pharmaceuticals, Opdivo with r symbol, PD-1, pembrolizumab, personalized medicine, pharma, pharmaceutical, small-molecule inhibitors, spontaneous remission, T-cells, toxicity, tyrosine kinase inhibitors (TKIs), University of Pennsylvania, vaccines | 1 Comment

My Calling

Posted on October 8, 2014 by Team Captain

I came into the childhood cancer community in 2013 as a member of the “general public”, having no personal connection to a child with cancer. My journey is different but not without appreciation for what cancer is and how devastating … Continue reading →

Posted in Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged American Cancer Society, CAC2, carcinosarcoma of the uterus, chemotherapy, Coalition Against Childhood Cancer, Congressional Childhood Cancer Caucus, Laurie Orloski, National Cancer Institute, White House | 3 Comments

Want to Make a Difference?

Posted on July 23, 2014 by Team Captain

Maybe, I am a little old-fashioned with my “mug shot” and in a few other ways, like this one: It is so amazing to me that in today’s “connected” world, there are so many people who you will work closely … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged #SaveJosh, Bill Burns, CAC2, Coalition Against Childhood Cancer, Laurie Orloski, Max Cure Foundation, National Cancer Institute, The Nicholas Conor Institute, TNCI | Leave a comment

Seeing is Believing:

Posted on July 3, 2014 by Team Captain

I am planning to write a series of posts that pertain to clinical issues, like palliative care services for improving outcomes in childhood cancer, but I wanted to take a step back and give some background first, especially about my … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Clinical Pharmacy, Investigational Drug Service, Laurie Orloski, PharmD, St. Jude | Leave a comment

C is for Cancer Camp

Posted on March 11, 2014 by Team Captain

“I’m not sure if it is possible, but if I can send you a “signal” after I go, then I promise that I will.” by Laurie’s mom, August 6 2009, 2 days before her untimely passing from a rare and aggressive uterine … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged American Cancer Society, Camp Can Do, Hershey, Laurie Orloski, LeHigh, Philadelphia | 4 Comments

Answer in the Sky

Posted on January 28, 2014 by Team Captain

So first off, what is up with this Polar Vortex thing? As if the first stint wasn’t bad enough, it came back!! I often think that I am better suited for Southern California than Pennsylvania, but there is one thing … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Laurie Orloski, Notre Dame Football | Leave a comment

Washington Lip Service

Posted on January 13, 2014 by Team Captain

Editor’s Note: Since this article was written, the Gabriella Miller Kid’s First Act was passed by the U.S. Senate by unanimous consent vote on March 11, 2014. The President signed the bill into law on April 3, 2014. So far, … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Congress, Gabriella Miller, Laurie Orloski, NCI, pediatric cancer, Senate, Senator Bob Casey, Senator Pat Toomey, The Gabriella Miller Kids First Act | Leave a comment

Smashing Walnuts: A Call to Arms

Posted on December 17, 2013 by Team Captain

Editor’s Note: Since this article was written, the Gabriella Miller Kid’s First Act was pass by the U.S. Senate by unanimous consent vote on March 11, 2014. President Obama signed the bill into law on April 4, 2014. It was … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged Gabriella Miller, Harry Reid, HR 2019, Kids First Research Act, Laurie Orloski, pink White House, Smashing Walnuts | 1 Comment

Races, Carnivals, and Birthdays

Posted on November 11, 2013 by Team Captain

I have been doing a lot of two things lately: working (medical writing stuff) and running. I think I have a touch of childhood cancer blogger-writer block. I do plan to elaborate about some comments made in my prior post, … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Get Well Gabby Foundation, Laurie Orloski, Oley Valley Country Classic, Steph’s Fall 5k, Wilkes-Barre | 1 Comment

Shocker of a Vacation

Posted on October 2, 2013 by Team Captain

Most people spend their summers doing things like taking vacation. I, on the other hand, spent this summer getting involved in childhood cancer awareness and trying to figure out ways to spearhead a new fundraising effort. As I discussed in … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged childhood cancer survivors, CHOP, DIPG, gold ribbon, Laurie Orloski, long term complications, NFL, Pro Football, St. Jude | 3 Comments

The Climb

Posted on August 30, 2013 by Team Captain

I have never had to personally deal with childhood cancer but have dealt with losing my parents at pivotal points in my life. My father passed away in 1996, when I was 21, having just completed my 4th year of … Continue reading →