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- Thankful and Fearful
- Every 2 minutes?
- Jace Ward’s Friends Can’t Wait
- Think about others
- Collaboration to Cure Medulloblastoma
- Two Little Words
- Turn Away… You may not want to hear this
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
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Missing Kylie by Mark Myers
Better Angels by Sadie Keller and Michael McCaul
The Truth 365 VideoIf you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.
Click photo below to see The Truth365 Video
Tag Archives: chemo
Five year cure, …really?
Five-year relative survival rates describe the percentage of patients with cancer that are alive five years after their disease is diagnosed. Use of 5-year survival statistics is more useful in aggressive cancers that have a shorter life expectancy following diagnosis (such … Continue reading
The Rest of the Story…
From Mikelle to Four Square Team Captain: “I wrote again. I realized that I needed to tell “The Rest of the Story.” It’s about the truth of my grief, what I’ve been through. If you choose to publish it, my … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized Tagged bone marrow aspirations, Broviac, chemo, cranial fluid, cranial shunt, dialysis, IV pump, meningitis, Mikelle G. Raffel, NG tube, oscillator, pic lines, pneumothorax, port, radiation, spinal drain, Wal-Mart 10 Comments
Lessons of losing a child to cancer
As the weeks dwindle down to mark one year of losing my son, Ryan, to cancer, I have been looking back and thinking hard about what I’ve been taught, or should I say, what was thrown in my lap to … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized Tagged antibiotics, bald heads, chemo, community, doctors, fever, hospital, Mikelle G. Raffel, nurses, patch changes, protocol 4 Comments
We are Soldiers of Cancer
Behind every soldier there is a family who makes sacrifices so their spouse, father or mother can serve our great country. Ryan’s family is one such family. Even in the shadow of pain and adversity, they are giving back to … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized Tagged Acute Myeloid Leukemia, AML, bone marrow transplant, chemo, Children's National, family, four square clobbers cancer, Mikelle G. Raffel, military families, pediatric cancer, PICU, Ryan's Battle Buddies, soldiers, Walter Reed, wounded warrior 2 Comments