Tag Archives: Congressional Childhood Cancer Caucus

September 2017 in our Capitol

In our nation’s Capitol, September will be full of activities that will highlight the need for more medical research and opportunities for us to show that we are One Voice Against Childhood Cancer. Together, we are asking our government to … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized, young adults | Tagged , , , , , , , , , , , , , , | 1 Comment

My Calling

I came into the childhood cancer community in 2013 as a member of the “general public”, having no personal connection to a child with cancer. My journey is different but not without appreciation for what cancer is and how devastating … Continue reading

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Fixing the Faults

This summer I wrote a raw piece entitled “The Fault in Our Systems”. Our family’s efforts to get Nathalie access to immunotherapy treatment (available to adults) seemed to be going nowhere. The inequities were everywhere and the playing field was … Continue reading

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Never Ever Capitalize “cancer”

Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s, then 17 year-old son, Carson. He was drawn to Carson’s book because he is also Vice Chairman of Max Cure, a foundation named after his grandson Max who is … Continue reading

Posted in Childhood Cancer, Pediatric Cancer, Uncategorized | Tagged , , , , , , , | 5 Comments