Category Archives: Cancer

Never Ever Capitalize “cancer”

Every Year in September during the Childhood Cancer Summit and CureFest I remember five years ago, meeting Carson’s mother and Max’s grandfather. Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s, then 17 year-old son, Carson. He was … Continue reading

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Dear American Cancer Society

Dear American Cancer Society, Good evening. I have always been appreciative of the work and research that the American Cancer Society funds. While I have always researched the organizations I support, it was not until recently that I decided to … Continue reading

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The Climb

 I have never had to personally deal with childhood cancer but have dealt with losing my parents at pivotal points in my life.  My father passed away in 1996, when I was 21, having just completed my 4th year of … Continue reading

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Finding Your Footprints

Have you ever tried to walk behind someone in the deep snow and step right in their footprints?  As you take each step, you may or may not hit each plant right in the already trodden snow.  And then, coming … Continue reading

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What’s MMMT got to do with it?

Editor’s Note: A very special welcome to Laurie Orloski who will be a regular blogger on Four Square Clobbers Cancer.  Laurie is an experienced writer who will also be able to provide us with her expertise in the field of … Continue reading

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Advocacy and Direction

Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the … Continue reading

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The Rest of the Story…

From Mikelle to Four Square Team Captain: “I wrote again.  I realized that I needed to tell “The Rest of the Story.”  It’s about the truth of my grief, what I’ve been through.  If you choose to publish it, my … Continue reading

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Together

Our community is built of many similar, yet different and diverse organizations. Collectively, we are looking for a cure for childhood cancer. No one has actually been able to say with absolute certainty exactly how many organizations actually exist in … Continue reading

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Lessons of losing a child to cancer

As the weeks dwindle down to mark one year of losing my son, Ryan, to cancer, I have been looking back and thinking hard about what I’ve been taught, or should I say, what was thrown in my lap to … Continue reading

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Mr. President, Did We Miss Your Call?

President Obama, perhaps you recall that back in January 2013 I reached out to you to talk about three specific small asks for the childhood cancer community. I know that you have had a lot on your plate recently. For obvious … Continue reading

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Lobbyist

Lobbyist… There, I said it! For me, it’s very difficult saying the “L” word. It never has felt good rolling around in my mouth, banging up against my molars and sliding out between my tight lips. I have always hated that … Continue reading

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We Must Stop Turning Our Backs on Children’s Cancer

When doctors told my wife and I that our soccer-playing, Harry Potter-reading 7-year-old daughter Olivia had cancer, we were struck with panic, dread and challenges we never could have imagined. And once we overcame the shock, we were stunned to … Continue reading

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End of Life Equality

Until we needed to enroll my daughter Alexis in a hospice program, I really had no idea how poorly we as a country manage the needs of children who face terminal diseases. Admittedly, having a conversation about children who face … Continue reading

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Rachel’s Place – Surviving Medulloblastoma

  Today, “Rachel’s Place” is with her family somewhere between Hope and Peace. She actually lives near Bel Air, Maryland, but her real place of comfort and security is anywhere she and her family are together. Each year during Brain … Continue reading

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National Cancer Survivor’s Day

National Cancer Survivor’s Day is a day of celebratory status for many children and their families across the world. This day should be celebrated to the extreme! Parties all over should be held. Families should hug and rejoice in their … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , | 11 Comments

Adrift in the Waters of Childhood Cancer-Arguing to Change the Standard of Care

April 11, 2008 will always remain etched in my memory for one simple reason. It is the day that we heard the words “your daughter has cancer.” They are four of the worst words that a parent could ever imagine … Continue reading

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DIPG – Everything you need to know

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The Patient Choice Act – Providing Choice Instead of Death

I suppose I never truly realized how little choice we have individually with respect to selecting the drugs and treatments we as Americans pursue for own health. This never personally impacted me until the diagnosis of my two year old … Continue reading

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We need more than just research

A mother noticed that her six year-old son’s eyelids were not closing normally and when he walked, he was slightly off balance.  A few days later, his parents’ worst nightmare became a reality; they were told that their son has … Continue reading

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Epilogue -Childhood Cancer, My Road Map Series

Five weeks ago I set out to create what I think is part of the road map for the issues facing the fight against childhood cancer, and the areas I feel could provide gains on this road. The truth is, … Continue reading

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