51 Childhood Cancer organizations strong and growing!
Missing Kylie by Mark Myers
" Never capitalize the word, "cancer." It does not deserve it. " Carson Leslie, 17
Better Angels by Sadie Keller and Michael McCaul
Better Angels by Sadie Keller and Rep. Michael McCaul
How my daughter embraced life with cancer as an unexpected adventure. Catie was just one of those unique people who had the ability to touch people and make them live a little more splendidly. This is Catie's story - and how she changed the world one brilliant moment at a time.
Click photo below to see The Truth365 Video
The book, "Grace" by Melinda Marchiano
Provide Chemo Ducks for Kids
Great for young school age kids
Tag Archives: end of life care
Your child has cancer, what next?
You have just been told, “Your child has cancer and they are going to need a lot of care.” No doubt about it, they will, but so are you. In order to properly take care of your child, as the parent … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized
Tagged anticipatory grief, Blyth Lord, Courageous Parents Network, degenerative disease, dragon parents, Emily Rapp, emotional needs, end of life care, Grief, grief counseling, Grief counselor, hospital chaplains, life-limiting illness, ministers, National Tay-Sachs and Allied Disease, palliative care, parents, pediatric palliative care, primary care doctor, psychological needs, psychologists, quality of life, rabbis, resources, social workers, The Still Point of the Turning World, video library, Your child has cancer
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End of Life Equality
Until we needed to enroll my daughter Alexis in a hospice program, I really had no idea how poorly we as a country manage the needs of children who face terminal diseases. Admittedly, having a conversation about children who face … Continue reading
Four-Square Clobbers Cancer 