Author Archives: Team Captain

it was one of those days

Author: Annette Leslie Related Article: Never Ever Capitalize cancer

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , | 2 Comments

Mesotheli-WHAT?

Mesothelioma is normally not a cancer one hears about in the childhood cancer community. That may be because, in most cases, because of the long latency period, it is not normally detected until the child becomes an adult.  Today, children in older schools may … Continue reading

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Shocker of a Vacation

Most people spend their summers doing things like taking vacation.  I, on the other hand, spent this summer getting involved in childhood cancer awareness and trying to figure out ways to spearhead a new fundraising effort.  As I discussed in … Continue reading

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Friends Don’t Let Friends Relay

Editor’s note: Little has changed since Jonathan Agin penned this article for the Huffington Post in February, 2013.   There are many amazing charitable organizations focused upon cancer research and support. Most of us can rattle off the big ones … Continue reading

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Never Ever Capitalize “cancer”

Every Year in September during the Childhood Cancer Summit and CureFest I remember five years ago, meeting Carson’s mother and Max’s grandfather. Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s, then 17 year-old son, Carson. He was … Continue reading

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Gold vs Pink

“Knowing everything that I know about cancer, I would, in a heartbeat, take any kind of adult cancer—no matter how nasty and aggressive the disease and treatment—over any cancer diagnosis and any chemotherapy for either of my daughters, future grandchildren” … Continue reading

Posted in Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , , | 14 Comments

Dear American Cancer Society

Dear American Cancer Society, Good evening. I have always been appreciative of the work and research that the American Cancer Society funds. While I have always researched the organizations I support, it was not until recently that I decided to … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , | 9 Comments

The Climb

 I have never had to personally deal with childhood cancer but have dealt with losing my parents at pivotal points in my life.  My father passed away in 1996, when I was 21, having just completed my 4th year of … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged | 1 Comment

Finding Your Footprints

Have you ever tried to walk behind someone in the deep snow and step right in their footprints?  As you take each step, you may or may not hit each plant right in the already trodden snow.  And then, coming … Continue reading

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What’s MMMT got to do with it?

Editor’s Note: A very special welcome to Laurie Orloski who will be a regular blogger on Four Square Clobbers Cancer.  Laurie is an experienced writer who will also be able to provide us with her expertise in the field of … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , | 8 Comments

Advocacy and Direction

Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the … Continue reading

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The Rest of the Story…

From Mikelle to Four Square Team Captain: “I wrote again.  I realized that I needed to tell “The Rest of the Story.”  It’s about the truth of my grief, what I’ve been through.  If you choose to publish it, my … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , , , , , , | 10 Comments

Together

Our community is built of many similar, yet different and diverse organizations. Collectively, we are looking for a cure for childhood cancer. No one has actually been able to say with absolute certainty exactly how many organizations actually exist in … Continue reading

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Lessons of losing a child to cancer

As the weeks dwindle down to mark one year of losing my son, Ryan, to cancer, I have been looking back and thinking hard about what I’ve been taught, or should I say, what was thrown in my lap to … Continue reading

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Mr. President, Did We Miss Your Call?

President Obama, perhaps you recall that back in January 2013 I reached out to you to talk about three specific small asks for the childhood cancer community. I know that you have had a lot on your plate recently. For obvious … Continue reading

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Lobbyist

Lobbyist… There, I said it! For me, it’s very difficult saying the “L” word. It never has felt good rolling around in my mouth, banging up against my molars and sliding out between my tight lips. I have always hated that … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 6 Comments

We Must Stop Turning Our Backs on Children’s Cancer

When doctors told my wife and I that our soccer-playing, Harry Potter-reading 7-year-old daughter Olivia had cancer, we were struck with panic, dread and challenges we never could have imagined. And once we overcame the shock, we were stunned to … Continue reading

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End of Life Equality

Until we needed to enroll my daughter Alexis in a hospice program, I really had no idea how poorly we as a country manage the needs of children who face terminal diseases. Admittedly, having a conversation about children who face … Continue reading

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Rachel’s Place – Surviving Medulloblastoma

Today, “Rachel’s Place” is with her family somewhere between Hope and Peace. She actually lives near Bel Air, Maryland, but her real place of comfort and security is anywhere she and her family are together. Each year during Brain Cancer … Continue reading

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National Cancer Survivor’s Day

National Cancer Survivor’s Day is a day of celebratory status for many children and their families across the world. This day should be celebrated to the extreme! Parties all over should be held. Families should hug and rejoice in their … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , | 11 Comments