Tag Archives: Brain cancer

CAVATICA Genomics Data Sharing

Editor’s Note: CAVATICA completed Beta testing and went live on October 17, 2016.  This is a huge step in the right direction to eliminate silos of data and enter a new world of data sharing. The complete story can bed … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Where are you now, Rock Hudson?

Are you wondering who is Rock Hudson? Do you think I have lost my mind? Well ….. Since my son Steven’s diagnoses with Stage Four Osteosarcoma over 7 years ago, followed by a diagnosis of Secondary Acute Myelogenous Leukemia, which required … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , , , | 4 Comments

Compassionate Use

You may remember the #SaveJosh news articles in the spring of 2014 where little Josh Hardy’s family mounted, as a last ditch effort, a social media campaign to get him into a clinical trial that St. Jude’s doctors said was … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , | 4 Comments

it was one of those days

Author: Annette Leslie Related Article: Never Ever Capitalize cancer

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , | 1 Comment

Never Ever Capitalize “cancer”

Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s, then 17 year-old son, Carson. He was drawn to Carson’s book because he is also Vice Chairman of Max Cure, a foundation named after his grandson Max who is … Continue reading

Posted in Childhood Cancer, Pediatric Cancer, Uncategorized | Tagged , , , , , , , | 5 Comments

DIPG – Everything you need to know

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , | Leave a comment

Tissue Donation – The last thing any parent wants to give

Progress, unfortunately is sometimes forged from the fires of pain mixed with strength, courage, passion and determination.  Nancy Goodman has such a story.  Nancy made a donation that no parent ever wants to give.   “My son, Jacob, was a beautiful, … Continue reading

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment