One day in September, after my wife Ellie and I visited a Senator in the Hart building, we met up with Ellyn Miller (Gabriella Miller’s mother) on a beautiful blue-sky morning in front of the Cannon House Building in Washington, DC. Ellyn had walked there from Union Station. We were there to lobby for medical research funds. Our grandson Conor is a survivor of neuroblastoma and Ellyn’s daughter was taken by DIPG brain cancer. We had a lot visiting to do on the Hill. During the day, we walked from the Cannon to the Rayburn, back to the Cannon, then to the Rayburn again and on to the Russell and back to the Cannon, not to mention all the walking inside those huge buildings that house our Congressional offices. For each word we uttered on behalf of medical research for childhood cancer, we must have spent a hundred steps walking from one place to another. By that afternoon, we all talked about our shoes and how much they hurt our feet. About a month later, I found this piece and then I realized how much Ellyn’s shoes must hurt her every day. This is dedicated to her and to other mothers who have had a child taken by cancer.
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Coalition Against Childhood CancerAnnual Meeting = Ann & Robert Lurie Children's Hospital of ChicagoJune 28th, 20175 days to go.
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
- Open Letter to Congress
- As Our Children Wait – Part 4, Conclusion
- As Our Children Wait – Part 3
- As Our Children Wait – Part 2
- As Our Children Wait – Part 1
- Why Motorsports?
- Moving the Needle
- What Not to Say When There is Nothing to Say
- NIH Budget Priorities
- Texas Proud!
- #MoreThan4 NCI Email Exchange
- Father, Daughter, Date Night
- Five year cure, …really?
- My Calling
- Fixing the Faults
- A Pair of Shoes
- So, It Begins:
- September’s Child
- Update: Camp Can Do
- Giving It All
- September – #ChildhoodCancerChallenge
- Where are you now, Rock Hudson?
- Lock Up September
- Compassionate Use
- The Fault in Our Systems
- Want to Make a Difference?
- Seeing is Believing:
- Five Reasons Why You Should Join the Fight Against Cancer
- 30% Funding Cuts
- Ellie’s Hats
Missing Kylie by Mark Myers
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The Truth 365 VideoIf you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.
Click photo below to see The Truth365 Video
CloudACS acute lymphoblastic leukemia Acute Myeloid Leukemia ALL American Cancer Society AML AYA bone marrow transplant Brain cancer Brain Tumor breast cancer CAC2 chemo chemotherapy childhood cancer CHOP Clinical Trials Coalition Against Childhood Cancer Compassionate use Congress Congressional Childhood Cancer Caucus CureFest DIPG Donna Carroll Carmical Dr. Francis Collins FDA four square clobbers cancer Gabriella Miller gold Joe Baber Jonathan Agin Laurie Orloski Leukemia lymphoma medulloblastoma National Cancer Institute NCI neuroblastoma NIH osteosarcoma precision medicine President Obama radiation rhabdomyosarcoma Rob Whan Smashing Walnuts survivor tumor White House Wilms tumor