One day in September, after my wife Ellie and I visited a Senator in the Hart building, we met up with Ellyn Miller (Gabriella Miller’s mother) on a beautiful blue-sky morning in front of the Cannon House Building in Washington, DC. Ellyn had walked there from Union Station. We were there to lobby for medical research funds. Our grandson Conor is a survivor of neuroblastoma and Ellyn’s daughter was taken by DIPG brain cancer. We had a lot visiting to do on the Hill. During the day, we walked from the Cannon to the Rayburn, back to the Cannon, then to the Rayburn again and on to the Russell and back to the Cannon, not to mention all the walking inside those huge buildings that house our Congressional offices. For each word we uttered on behalf of medical research for childhood cancer, we must have spent a hundred steps walking from one place to another. By that afternoon, we all talked about our shoes and how much they hurt our feet. About a month later, I found this piece and then I realized how much Ellyn’s shoes must hurt her every day. This is dedicated to her and to other mothers who have had a child taken by cancer.
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Coalition Against Childhood CancerAnnual Meeting = Ann & Robert Lurie Children's Hospital of ChicagoJune 28th, 201761 days to go.
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- As Our Children Wait – Part 4, Conclusion
- As Our Children Wait – Part 3
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- Fixing the Faults
- A Pair of Shoes
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Missing Kylie by Mark Myers
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The Truth 365 VideoIf you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.
Click photo below to see The Truth365 Video
CloudACS acute lymphoblastic leukemia Acute Myeloid Leukemia ALL American Cancer Society AML AYA bone marrow transplant Brain cancer Brain Tumor breast cancer CAC2 chemo chemotherapy childhood cancer CHOP Clinical Trials Coalition Against Childhood Cancer Compassionate use Congress Congressional Childhood Cancer Caucus CureFest DIPG Donna Carroll Carmical Dr. Francis Collins FDA four square clobbers cancer Gabriella Miller gold Joe Baber Jonathan Agin Laurie Orloski Leukemia lymphoma medulloblastoma National Cancer Institute NCI neuroblastoma NIH osteosarcoma precision medicine President Obama radiation rhabdomyosarcoma Rob Whan Smashing Walnuts survivor tumor White House Wilms tumor