Category Archives: Uncategorized

Washington Lip Service

Editor’s Note: Since this article was written, the Gabriella Miller Kid’s First Act was passed by the U.S. Senate by unanimous consent vote on March 11, 2014. The President signed the bill into law on April 3, 2014. So far, … Continue reading

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Turn Foreign Aid into Cures for Cancer

In 2011, the United States spent $49.5 billion on foreign aid ( $17.8 billion in military assistance and  $31.7 billion economic assistance) .  Foreign aid has been a hot topic ever since our country slipped into recession in 2008.  On … Continue reading

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iSad, iMad, iPad

Editor’s Note: Since this article was written, the Gabriella Miller Kid’s First Act was passed by the U.S. Senate by unanimous consent vote on March 11, 2014. The President signed the bill into law on April 4, 2014. The next … Continue reading

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Let’s Push Buttons

Would you believe?: 96% of all clothing sold is for adults. 96% of all breakfast cereals are consumed by adults. 96% of all bicycle helmets are worn by adults. 96% of all cancer research conducted by the National Cancer Institute … Continue reading

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The Small Hero Amongst Us All

Editor’s Note: Jonathan Agin penned this piece two years ago for the Huffington Post. The only things that have changed since then are the additional faces of the small heroes each year. Each year, toward the middle of December, there … Continue reading

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Races, Carnivals, and Birthdays

I have been doing a lot of two things lately: working (medical writing stuff) and running.  I think I have a touch of childhood cancer blogger-writer block.  I do plan to elaborate about some comments made in my prior post, … Continue reading

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The Exploitation of Childhood Cancer

You all remember that little government shutdown a handful of weeks back don’t you? The emotional press conferences held by members of Congress on both sides of the aisle talking about how children with cancer would not receive treatments at … Continue reading

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Mesotheli-WHAT?

Mesothelioma is normally not a cancer one hears about in the childhood cancer community. That may be because, in most cases, because of the long latency period, it is not normally detected until the child becomes an adult.  Today, children in older schools may … Continue reading

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Shocker of a Vacation

Most people spend their summers doing things like taking vacation.  I, on the other hand, spent this summer getting involved in childhood cancer awareness and trying to figure out ways to spearhead a new fundraising effort.  As I discussed in … Continue reading

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Friends Don’t Let Friends Relay

Editor’s note: Little has changed since Jonathan Agin penned this article for the Huffington Post in February, 2013.   There are many amazing charitable organizations focused upon cancer research and support. Most of us can rattle off the big ones … Continue reading

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Never Ever Capitalize “cancer”

Every Year in September during the Childhood Cancer Summit and CureFest I remember five years ago, meeting Carson’s mother and Max’s grandfather. Richard Plotkin, a retired lawyer, read a book written by Annette Leslie’s, then 17 year-old son, Carson. He was … Continue reading

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Dear American Cancer Society

Dear American Cancer Society, Good evening. I have always been appreciative of the work and research that the American Cancer Society funds. While I have always researched the organizations I support, it was not until recently that I decided to … Continue reading

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The Climb

 I have never had to personally deal with childhood cancer but have dealt with losing my parents at pivotal points in my life.  My father passed away in 1996, when I was 21, having just completed my 4th year of … Continue reading

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Finding Your Footprints

Have you ever tried to walk behind someone in the deep snow and step right in their footprints?  As you take each step, you may or may not hit each plant right in the already trodden snow.  And then, coming … Continue reading

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Advocacy and Direction

Lately, I have wondered whether or not the childhood cancer community is on the right track overall. By this, I mean, is the direction of the community in terms of raising money, awareness and the manner of funding research the … Continue reading

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The Rest of the Story…

From Mikelle to Four Square Team Captain: “I wrote again.  I realized that I needed to tell “The Rest of the Story.”  It’s about the truth of my grief, what I’ve been through.  If you choose to publish it, my … Continue reading

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Together

Our community is built of many similar, yet different and diverse organizations. Collectively, we are looking for a cure for childhood cancer. No one has actually been able to say with absolute certainty exactly how many organizations actually exist in … Continue reading

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Lessons of losing a child to cancer

As the weeks dwindle down to mark one year of losing my son, Ryan, to cancer, I have been looking back and thinking hard about what I’ve been taught, or should I say, what was thrown in my lap to … Continue reading

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Mr. President, Did We Miss Your Call?

President Obama, perhaps you recall that back in January 2013 I reached out to you to talk about three specific small asks for the childhood cancer community. I know that you have had a lot on your plate recently. For obvious … Continue reading

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Lobbyist

Lobbyist… There, I said it! For me, it’s very difficult saying the “L” word. It never has felt good rolling around in my mouth, banging up against my molars and sliding out between my tight lips. I have always hated that … Continue reading

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