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Recent Posts
- New Kids First Research Act 2.0 HR 623 introduced
- Think about others
- Color A Car
- Collaboration to Cure Medulloblastoma
- Two Little Words
- 4 TIMER
- Turn Away… You may not want to hear this
- How can a baby be a hero?
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
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Better Angels by Sadie Keller and Michael McCaul
The Truth 365 Video
If you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.Click photo below to see The Truth365 Video
Tag Archives: CureFest
Hope
From his perspective, my then 10 year-old grandson Conor has always had a somewhat normal childhood. He lives in California, is good in school, a cool blond-headed surfer dude and a wild and radical skateboarder. In fact, I am amazed … Continue reading
So, It Begins:
I have been actively engaged in the advocacy fight for more federal funding for childhood cancer since my first trip to Washington DC in June of 2008. This began less than 3 months after I lost my only son, Caleb, … Continue reading
September – #ChildhoodCancerChallenge
This will be PAC2’s 7th September, aka National Childhood Cancer Awareness Month. Starting virtually unaware, except for the worst fact about childhood cancer, over the years we’ve learned that the research funding for all cancers is not the same, and … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized
Tagged #ChildhoodCancerChallenge, Bob Piniewski, CAC2, Coalition Against Childhood Cancer, Congressional Childhood Cancer Summit, CureFest, Dr. Francis Collins, john f. Kennedy, long term survival rate, National Cancer Awareness Month, National Institutes of Health, NCI, NIH, PAC2, People Against Childhood Cancer, Rep. Chris Van Hollen, Rep. Michael McCaul
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