Tag Archives: CureFest

As Our Children Wait – Part 4, Conclusion

Posted on July 14, 2015 by Team Captain

The rate of childhood cancer has been escalating since the 1970’s, today 1 in 285 children will be diagnosed with cancer before the age of 20. Our children continue to die, suffer and be irreparably harmed and all the while, … Continue reading →

Hope

Posted on September 26, 2014 by Team Captain

From his perspective, my then 10 year-old grandson Conor has always had a somewhat normal childhood. He lives in California, is good in school, a cool blond-headed surfer dude and a wild and radical skateboarder. In fact, I am amazed … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease | Tagged American Cancer Society, Beth Anne Baber, Cami Boddy, Conor Boddy, CureFest, Ellie Baber, Golden Toast, Grace Furnari, Joe Baber, Lafayette Park, Lights of Hope, McCaul, neuroblastoma, Van Hollen, White House | 7 Comments

So, It Begins:

Posted on September 24, 2014 by Team Captain

I have been actively engaged in the advocacy fight for more federal funding for childhood cancer since my first trip to Washington DC in June of 2008. This began less than 3 months after I lost my only son, Caleb, … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized | Tagged Capitol Hill, Congressional Childhood Cancer Caucus, CureFest, DC, Dr. Francis Collins, Dr. Harold Varmus, Lafayette Square, NIH, Office of Public Engagement, Rob Whan, Washington, White House | 5 Comments

September – #ChildhoodCancerChallenge

Posted on September 2, 2014 by Team Captain

This will be PAC2’s 7th September, aka National Childhood Cancer Awareness Month. Starting virtually unaware, except for the worst fact about childhood cancer, over the years we’ve learned that the research funding for all cancers is not the same, and … Continue reading →