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Recent Posts
- Maine Vincristine Shortages
- September 2019 in our Capitol
- Collaboration to Cure Medulloblastoma
- Two Little Words
- Lock up September 2019
- 4 TIMER
- Turn Away… You may not want to hear this
- How can a baby be a hero?
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- $30 million for AYA
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
- Open Letter to Congress
- As Our Children Wait – Part 4, Conclusion
- As Our Children Wait – Part 3
- As Our Children Wait – Part 2
- As Our Children Wait – Part 1
- Why Motorsports?
- Moving the Needle
- What Not to Say When There is Nothing to Say
- NIH Budget Priorities
- Texas Proud!
- #MoreThan4 NCI Email Exchange
- Father, Daughter, Date Night
- Immunotherapy
- Five year cure, …really?
- My Calling
- Fixing the Faults
- A Pair of Shoes
- Hope
- So, It Begins:
- September’s Child
- Update: Camp Can Do
- Giving It All
- September – #ChildhoodCancerChallenge
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The Truth 365 Video
If you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.Click photo below to see The Truth365 Video
Tag Archives: CureFest
September 2019 in our Capitol
In our nation’s Capitol, September will be full of activities that will highlight the need for more medical research and opportunities for us to show that we are One Voice Against Childhood Cancer. Together, we are asking our government to … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized, young adults
Tagged Alliance for Childhood Cancer, Arms Wide Open Childhood Cancer Foundation, Capitol Mall, Congressional Childhood Cancer Caucus, CureFest, Freedom Plaza, Golden Toast, Joe Baber, Kids V Cancer, Night of Golden Lights, Rally for Medical Research, Rally Foundation for Childhood Cancer Research, The Truth 365, The White House, Washington DC
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Hope
From his perspective, my then 10 year-old grandson Conor has always had a somewhat normal childhood. He lives in California, is good in school, a cool blond-headed surfer dude and a wild and radical skateboarder. In fact, I am amazed … Continue reading
So, It Begins:
I have been actively engaged in the advocacy fight for more federal funding for childhood cancer since my first trip to Washington DC in June of 2008. This began less than 3 months after I lost my only son, Caleb, … Continue reading
September – #ChildhoodCancerChallenge
This will be PAC2’s 7th September, aka National Childhood Cancer Awareness Month. Starting virtually unaware, except for the worst fact about childhood cancer, over the years we’ve learned that the research funding for all cancers is not the same, and … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized
Tagged #ChildhoodCancerChallenge, Bob Piniewski, CAC2, Coalition Against Childhood Cancer, Congressional Childhood Cancer Summit, CureFest, Dr. Francis Collins, john f. Kennedy, long term survival rate, National Cancer Awareness Month, National Institutes of Health, NCI, NIH, PAC2, People Against Childhood Cancer, Rep. Chris Van Hollen, Rep. Michael McCaul
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