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- Thankful and Fearful
- Every 2 minutes?
- Jace Ward’s Friends Can’t Wait
- Think about others
- Collaboration to Cure Medulloblastoma
- Two Little Words
- Turn Away… You may not want to hear this
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
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Missing Kylie by Mark Myers
Better Angels by Sadie Keller and Michael McCaul
The Truth 365 VideoIf you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.
Click photo below to see The Truth365 Video
Tag Archives: Ependymoma
Survivor 2nd Edition
In our first edition of Survivor, we followed a typical group of 36 kids that were diagnosed on one day with childhood cancer. We used 36 kids because when the first article was written, in the United States, on average … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease Tagged Acute Lymphocytic Leukemia, Acute Myeloid Leukemia, ALL, American Cancer Society, AML, Astrocytoma, Brain Tumor, cardiac disease, Central Nervous Syatem, chemotherapy, CNS, Cranial radiation therapy, cyclophosphamide, DIPG, Ependymoma, Ewing Sarcoma, Hodgkin Lymphoma, Joe Baber, Medulloblastomia, Neoplasms, neuroblastoma, Non Hodgkins Lymphoma, osteosarcoma, Ovarian Germ Cell Tumors, radiation, Retinoblastoma, rhabdomyosarcoma, Testicular Germ Cell Tumors, Wilms tumor 7 Comments
Childhood Cancer by the Numbers
Numbers are wonderful. Numbers are dangerous. Having spent most of my career in management, within the retail sector, I have been conditioned to pay attention to numbers. Numbers can paint a picture. Numbers can be your navigator. They can show … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized Tagged ACS, acute lymphoblastic leukemia, Acute Myeloid Leukemia, American Cancer Society, Astrocytoma, bone tumor, Ependymoma, hepatic tumor, Hodgkin, Joe Baber, lymphoma, medulloblastoma, neuroblastoma, Non-Hodgkin, observed survival, osteosarcoma, Ovarian germ cell, reticuloendothelial neoplasms, Retinoblastoma, rhabdomyosarcoma, Testicular germ cell, Wilms tumor 2 Comments
Although everyone in our Childhood Cancer group is trying to survive, this contest is not like the TV game show where everyone is reasonably healthy and one lucky person wins a million dollars if they are the lone survivor. Every … Continue reading
Posted in Childhood Cancer, Pediatric Cancer, Uncategorized Tagged acute lymphoblastic leukemia, Acute Myeloid Leukemia, adolescents, American Cancer Society, American Childhood Cancer Organization, asthma, Astrocytoma, AYA, blood cancer, BMT, bone marrow transplant, bone tumors, Brain Tumor, breast, cardiac arrest, chemotherapy, cognitive deficit disorder, Dana-Farber Cancer Institute, depression, die, disabling chronic healt problems, Ependymoma, Ewings sarcoma, fatigue, genomic, gilomas, hearing loss, heart transplant, Hepatic, Hodgkin, hospital, immune deficiency disorder, infertility, Kennedy Bougher, kidney transplant, Leukemia, life-theatening, lymphoma, medulloblastoma, Melanoma, memory issues, National Cancer Institute, NCI, Neoplasms, neuroblastoma, NonHodgen, osteosarcoma, Ovarian germ cell, PAC2, People Against Childhood Cancer, precision medicine, radiation, Retinoblastoma, rhabdomyosarcoma, sarcoma, sequencing, solid tumor, survivor, Testicular germ cell, Thyroid carcinoma, toxic, tumor, vision problems, Wilms tumor, young adults 4 Comments