Category Archives: DIPG

Dear Editor…

Bereaved parents, Gavin and Wendy Lindberg from the EVAN Foundation, recently wrote a very moving letter to the editor of the New York Times. Their letter touched the hearts of the  parents and grandparents in the childhood cancer community.  Letters … Continue reading

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Rare Disease, young adults | Tagged , , , , , , , , , , , , , | Leave a comment

Really? It’s “rare?”

In our world, when something is considered to be rare, it usually denotes that it has value. Everyone would agree that the Hope Diamond and Leonardo De Vinci’s Mona Lisa, painted in the 16th century, are rare and very valuable. … Continue reading

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Uncategorized, young adults | Tagged , , , , , | Leave a comment

Jace Ward’s Friends Can’t Wait

We will remember our friend Jace as a wonderful, positive, fun loving, selfless guy who enjoyed life, loved his friends, his family and his God. To some, he may be remembered as an outstanding national advocate for DIPG research, or … Continue reading

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Rare Disease, Uncategorized | Tagged , , , , , , , , , , , , | Leave a comment

National Cancer Survivor’s Day

National Cancer Survivor’s Day is a day of celebratory status for many children and their families across the world. This day should be celebrated to the extreme! Parties all over should be held. Families should hug and rejoice in their … Continue reading

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Rare Disease, Uncategorized, young adults | Tagged , , , | 11 Comments