Tag Archives: Senate

Dear Editor…

Posted on December 31, 2024 by Team Captain

Bereaved parents, Gavin and Wendy Lindberg from the EVAN Foundation, recently wrote a very moving letter to the editor of the New York Times. Their letter touched the hearts of the parents and grandparents in the childhood cancer community. Letters … Continue reading →

Posted in Cancer, Childhood Cancer, DIPG, Pediatric Cancer, Rare Disease, young adults | Tagged Accelerating Kids’ Access to Care Act, bereaved parents, child-loss, childhood cancer, Congress, Creating Hope Act, Editor, Gabriella Miller Kids First Research Act 2.0, House, Letters, Newpaper, PRV Vouchers, Senate, The Give Kids A Chance Act | Leave a comment

Two Little Words

Posted on September 8, 2018 by Team Captain

Two words that are used most when people contact Members of the House or Senate are: “I want,” and “I need.” Representatives and Senators hear them everyday. The two words they seldom hear are “Thank You.” This year alone, Congress … Continue reading →

Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized, young adults | Tagged AYA, CDMRP, Gabriella Miller Kids First Research Act, House of Representatives, Joe Baber, pediatric cancer, RACE Act, Senate, STAR Act | 1 Comment

Washington Lip Service

Posted on January 13, 2014 by Team Captain

Editor’s Note: Since this article was written, the Gabriella Miller Kid’s First Act was passed by the U.S. Senate by unanimous consent vote on March 11, 2014. The President signed the bill into law on April 3, 2014. So far, … Continue reading →