This tab is devoted to current proposed legislative initiatives in Congress that will have an impact on the childhood cancer community. Click on any of the current legislative bills below that interest you to get all the information you need. Take action by contacting your legislators and speak up for the children. We strongly encourage everyone to write their Representative and/or Senators and voice your opinion on the legislation that affects you and/or our childhood cancer community. You are their voice. Speak loudly. Speak often.
THIS is the most important Childhood Cancer Legislation we have today:
GOOD NEWS! The Mikaela Naylon Give Kids a Chance Act – HR 1262 passed the full House of Representatives on December 1, 2025.
Our next step is to generate cosponsors for the Senate version, Give Kids A Chance Act, S. 932. We have 20 cosponsors as of 12/1/2025.
We have made it super quick and very easy for you to write your each of your Senators. This should not take more than five minutes! You can make it personal, in just one sentence, tell them why it’s important to you, but please be respectful. Fill out the form and you will easily write a letter to both of your Senators, it’s that easy! Click here to take action!
On February 12, 2025, Congressman Michael McCaul reintroduced HR 1262 – Give Kids a Chance Act of 2025 in the House of Representatives. This time it includes two pediatric cancer bills that were cut from the Senate’s December funding bill. HR 1262 is a bipartisan bill that this Congress can pass now. In addition, Senators Bennet and Mullin recently introduced a very similar Give Kids A Chance Act, S. 932. The House and Senate’s version includes the following bills.
- The Give Kids a Chance Act to maximize chances scientists find cures for kids with cancer by providing for pediatric studies of combinations of new cancer drugs.
- The Creating Hope Reauthorization Act (PRV Vouchers) to reauthorize rare pediatric priority review voucher program, also known as the the Creating Hope Reauthorization Act, that expired in December 2024 after yielding 65 new drugs for kids.
- No matter how you communicate, Always be Respectful and Courteous!
Author: Joe Baber
Four-Square Clobbers Cancer 
Think about it for just a moment …. Imagine if 1900 people were killed this week in a landslide, train wreck or explosion. What do you think the lead story would be on the media?
Now, contrast that with 1900 children dying from cancer EVERY WEEK and that’s called “rare.” It’s time we all get involved to change this.
Thank You #TNCI
Please devote more time and money to help cure these horrific childhood cancers. It is shameful that there is not more research for these children.
My granddaughter Riley was diagnosed with AT/RT brain cancer when she was just 16 months. Please continue to fund research for Childhood Cancer, the current treatment, when effective causes life long difficulties, these babies deserve the opportunity to live a good quality life. 46 kids are diagnosed with cancer everyday, 7 of them will die, just take a moment and imagine the horror of two classrooms being destroyed every day and 7 children not going home to their parents, this is our reality.
My 18 year old nephew passed away this past July from Ewing Sarcoma. Enough is enough. No more families should have to go through what my sisters family has gone through.
Well that’s a out right lie cause my child that is only 1and 1/2 year old has cancer.. so FDA please lie some more. Lie about drug prices being marked up or the fact the FDA is responsible for suppressing knowledge and any information about meds. that can cure cancer cause the pharmaceutical industry wouldn’t make money…
We need all the reasearch posible. And offer more help to Kids with not health Insurance. Help help help.
My grandson who is now 27 months old, was diagnosed with Retinoblastoma in May 2015. At his age, he has no idea what is going on. He only knows he and his mommy take a long trip that isn’t any fun. It revolves around being poked, prodded, laying flat on his back for 6-8 hours when they administer chemo.. a baby should not be going through these things. There is no reason our children/grandchildren should be getting cancer, but there is even LESS reason why there is not more research and funding to find cures and medications to actually cure them.
The Nation needs more money set a side for Childhood Cancer, our very young are passing over every minute
Quit destroying our very young by poisoning them with chemo and burning them with atomic bombs. Work to find a cure and quit padding the pockets of Pharma giants. We are a super power. Prove it.
These children need us to fight for them. They deserve more options for treatment. How can we look at our children and know that we haven’t done more for them. Please, please. please help our children fighting cancer survive!
Lets try and raise more money for children with cancer so many more live karen
Its absolute bullshit that childrens cancer doesnt get more research and new drugs because it isnt pretty and no one wants to talk about it and big pharma doesnt see a lot of money in it. That is just disgusting. Children deserve our very best of everything. ESPECIALLY when it comes to healthcare! America projects itself as the best in so many ways but childrens healthcare and cancer treatments are seriously lacking. Start f**king leading and save these poor babies. Unbelievable that this is even an issue in twenty first century america. Shame on everyone.
This is a very important problem plaguing our world right now. I myself am a survivor of childhood cancer. Unfortunately some are not so lucky do to the lack of funding for research for childhood cancers. I live in a fairly small community and within the last year there has been more than 10 children in the area diagnosed with all different typesnof chilhood cancer. One of these children is my nephew who was diagnosed at only 22 months with a very rare form of brain cancer. There are children with different types of leukemia, sarcomas, lymphomas, and other types of brain cancers. My nephew is doing well..we are very lucky to live where we do to have a wonderful hospital near to us. The wonderful people at the University of Iowa Children’s Hospital take very good care of the kids and their families. However some patients are not lucky enough to have such a wonderful hospital in their area. I know that there are many costs for parents and families of children with childhood cancers first hand. These families and patients already have enough to worry about without having to wonder if there are even medications out there for their child to have access to. No child should have to ask “Mommy, am I gonna die?”. Childhood cancer research funding could greatly increase the chances of survival for thousands of kids every day.
There is no reason to not provide funding for our children! Seriously something wrong with this stance! Wake up, and do something!
Today’s children need more research for their early cancers. Spend money on children’s research. Give them life!
Children deserve up to date HUMANE treatment options. Children deserve more than 4% of federal funding for research/treatment options.
I am a mother who lost son in 2010 to a “Rare osteosarcoma cancer.
Think about all mothers crying every day and missing there children and think about children we loosing every day.
They are our future. What kind a future we are going to have. Find a cure. That is priority to save our future. Have families together.
While you working on finding a cure think about your children. It can happened to anyone.
My Granddaughter – Diagnosed with Retinoblastoma July 2015, Chemo, Radiation… Left eye removed, January 2017 (CANCER FREE). Prosthetic Eye, March 12017.
Facebook – Lizzie: Warrior Princess
Glad to hear she is cancer free today. We will continue to wish for her good health. Keep us posted.
Kids fighting cancer & their families need our help. We need to be their voices. 4% isn’t enough! Childhood cancer research needs more better & proper funding from the government! More kids die of cancer than adults due to improper funding! Let’s make simple donations & help fight childhood cancer!🎗🎗🎗
iffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat brain tumors found at the base of the brain. They are glial tumors, meaning they arise from the brain’s glial tissue — tissue made up of cells that help support and protect the brain’s neurons.
My daughter leondra Ellis she is 11 yrs old she has this dipg brain cancer I made her awareness page leondra world on FB we need more research to help us fight this nobody talks about this it’s very hard seeing your child goes from being so happy to being hurt sad in depressed please help me get my daughter story out help us find the help me need
My son is a lucky one that fought and survived resistant Hodgkin’s lymphoma. What the treatments did to him- it’s heartbreaking. Stealing what he loved early in his life. Stealing his innocence. Taking his childhood away. This shouldn’t happen. Let’s fund childhood cancer!
Please help the children?
Time to show the world our children matter just as much or more as they are the future of the world. Childhood cancer will no longer survive and take our kids .
Our son Oscar Hasham died of DMG at age 10. We need more federal funding to find a cure as no child deserves to hear there is no cure, make memories.
I lost my brother to cancer when we were young, i am very passionate about kids with cancer and in 2016, I visited a local hospital in Nairobi, Kenya and the number of kids with cancer not getting the best treatment is sickening. After that I wrote a small piece about it, time passed didn’t get a way to help so I focused on other things. Recently people have been calling me asking if I could help them help children with cancer any ideas please?
Necesitamos que los niños con el diagnostico de cáncer reciban Medicaid . Al momento de diagnosticarlos. Es demasiado caro el tratamiento las familias vivimos en el hospital tenemos poco tiempo extra para trabajar y ayudar a nuestros otros hijos . Necesitamos más inversiones en la investigación sobre medicamentos contra el cáncer. Es una terrible enfermedad que cada día se vive más