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Recent Posts
- Two Little Words
- September 2018 in our Capitol
- Lock up September 2018.
- SU2C Funding Opportunities
- 4 TIMER
- Turn Away… You may not want to hear this
- How can a baby be a hero?
- Cord Blood, a life line
- CAVATICA Genomics Data Sharing
- $30 million for AYA
- The Cancer Moonshot: Are Our Kids Stepping on the Moon Too?
- Broken Trust
- Fly Me to the Moon
- I Gladly Spoke Up for Kids With Cancer Today
- A 10 year old, Speaking from Experience
- Bereavement Meeting
- Open Letter to Congress
- As Our Children Wait – Part 4, Conclusion
- As Our Children Wait – Part 3
- As Our Children Wait – Part 2
- As Our Children Wait – Part 1
- Why Motorsports?
- Moving the Needle
- What Not to Say When There is Nothing to Say
- NIH Budget Priorities
- Texas Proud!
- #MoreThan4 NCI Email Exchange
- Father, Daughter, Date Night
- Immunotherapy
- Five year cure, …really?
- My Calling
- Fixing the Faults
- A Pair of Shoes
- Hope
- So, It Begins:
- September’s Child
- Update: Camp Can Do
- Giving It All
- September – #ChildhoodCancerChallenge
- Where are you now, Rock Hudson?
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The Truth 365 Video
If you have not had a child suffer from cancer, you must watch this video to get the real picture of what it is like. It takes only 8 minutes, but it will be the best 8 minutes you will spend in order to understand what is happening to our kids and what we can do about it.Click photo below to see The Truth365 Video
Tag Archives: Johnson and Johnson
Fixing the Faults
This summer I wrote a raw piece entitled “The Fault in Our Systems”. Our family’s efforts to get Nathalie access to immunotherapy treatment (available to adults) seemed to be going nowhere. The inequities were everywhere and the playing field was … Continue reading
Posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized
Tagged Bristol-Myers Squibb, Children's Oncology Group, Compassionate use, Congressional Childhood Cancer Caucus, Congressman Chris Van Hollen, Congressmen Mike McCaul, Dr. Harold Varmus, Genentech, genetic analysis, GlaxoSmithKline, Henry and Me, Johnson and Johnson, MD Anderson, Merck, Nathalie Traller, Nathan Traller, NCI, NIH, PDL, PDL1, Pediatric Cancer Advocates, pediatric MATCH Trial, St. Baldricks, Stillbrave, tumor, Vickie Traller, White House
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