Along with 250 childhood cancer organizations, I also support Ellyn Miller and Smashing Walnuts Foundation’s request for a hearing on H.R. 623 the Gabriella Miller Kids First Research Act 2.0 before Mother’s Day, May 9, 2021, because far too many families been affected by childhood cancer. While we have seen some progress in the last two decades, children are still dying at an alarming rate and progress has not been fast enough due to lack of funding. This bipartisan legislation uses a unique funding source that will not require appropriations because it will not use taxpayer funding. What better gift could Congress give to the parents of our nation’s future generations than to at least hear a very popular proposal to improve research funding for the number one disease killer of our children?
As America’s leaders, we need your help fighting for much needed research funding for children diagnosed with cancer and other diseases. Childhood cancer remains the number one cause of death by disease for children in the United States and around the world. Each year, 15,780 children from birth to 19 will be diagnosed with cancer. For children who do survive, two-thirds face long-term survivorship issues – one-third of those being severe to life threatening. Additional funding is critically needed to supplement genomic research for childhood cancers and other diseases that strike our children in the U.S.
The original Gabriella Miller Kids First Pediatric Research Program was first created without using taxpayer funding in 2014. Under this program, more than two-dozen pediatric research-focused laboratories have generated vital genomic data that will be shared with the entire research community to accelerate the development of prevention, early detection, and therapeutic interventions. However, we are just getting started and additional financial support is needed to expand this program and the required research.
Childhood cancer is not going away, in fact it is increasing and children are still dying. Please, put the Gabriella Miller Kids First Research Act 2.0 on your upcoming hearing agenda so that the bill can be voted on and eventually placed before the full House of Representatives for their approval.
Thank you for your consideration,