HR 4429 In Person/Phone Transcript

In person/telephone transcript

An in-person meeting would be best, but a phone call could work as well. Congressmen will take time to speak to constituents in their district. Multiple asks of the same congressman are also suggested. Hopefully, they become multiple thank you’s instead of asks.

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Congressman/Congresswoman XXXX

I am XXXX, a constituent in your district from (provide family name and address). I am calling to ask you to do the easiest thing you will ever have to do in your career, and most likely also the most righteous thing you will ever do. I am asking you to support the “Fairness to Kids With Cancer Act” HR 4429. In summary, the bill asks for the total amount of federal funds obligated for pediatric cancer research to be consistent with United States census reports of people under the age of 18.

Pediatric Cancer is an unfortunate reality for our/ the xxx family. We/they have lost/are currently battling/are a survivor of pediatric cancer. A pediatric cancer diagnosis is devastating to immediate family, extended family, friends, neighbors, and even entire communities. What is more troubling is that many cancer diagnoses could be treated with proper funding.

Our children have been victims of disproportionate funding since the signing of the Declaration of Independence. The children are counting on your voice and support to level the playing field. There is no clearer bipartisan act greater than the health of our children and their right to grow up and become adults.

Can we inform Congressman Fitzpatrick of Pennsylvania’s 1st congressional district that you are on board and ready to support by co-sponsoring this bill or would you like to hear more?

Please reach out to either Joe Knowles Joseph.Knowles@mail.house.gov or Michael McCabe Michael.McCabe@mail.house.gov from Congressman Fitzpatrick’s office to confirm your willingness to co-sponsor.

If necessary.

  • SHARE INTIMATE DETAILS OF THE CHILD’S JOURNEY
  • Cancer, specifically brain cancer, is the #1 cause of disease-related deaths in people under the age of 20.
  • Only 4% of our federal cancer funding budget goes to children. That is 4% for ALL pediatric cancers combined. There are dozens of types of childhood cancers and countless subtypes, all of them receive a mere 4%.
  • Since 1980 only 3 drugs have been approved for use in treating childhood cancer. HUNDREDS of drugs have been developed for adults during the same period.
  • 1 in 285 children will be diagnosed with cancer this year. Some of those children will be forced to endure the same treatment options that children diagnosed over fifty years ago received. For example, children diagnosed today with DIPG (Diffuse Intrinsic Pontine Glioma), receive the same standard treatment options, and virtually 0% survival, that Astronaut Neil Armstrong’s 2-year-old daughter, Karen, received back in 1962. That is almost 58 years with no progress.
  • Every day in the United States, an estimated 43 children are diagnosed with some form of cancer. 1 out of 5 of them will not survive. For those who do survive, they are forced to endure treatment options that are toxic and outdated. Some children die cancer-free, but they die from the side effects of these harsh treatments.
  • Expert researchers believe that a cure for the most difficult pediatric cancers will lead to new and innovative cancer therapies and cures for adult cancers as well.
  • 60% or 3 out of 5 children who survive cancer suffer late effects, such as infertility, heart failure and secondary cancers.
  • Before 1940 great progress had been made with the development of cancer treatments. Specifically: surgery, radiation therapy, and chemotherapy. Since then, except for immunotherapies which still needs to be further explored, the primary focus has been on improving strategies already developed, rather than inventing new methods of treating cancer or, even better, finding a cure.

We have a moral obligation to do more for our suffering children. WE MUST DO BETTER! This is a perfect opportunity to give our children the resources necessary to increase their quality of life and offer hope where we haven’t been able to before. Make our kids a priority.