Kids First 2.0 – HR 2008

Additional funding is needed to supplement much needed research for childhood cancers and other disorders that strike our nation’s children. The Kids First Research Act 2.0 would redirect approximately $320 million in existing funds to the Gabriella Miller Kids First Pediatric Research Program at the National Institutes of Health.

What does this bill do?  The Kids First Research Act 2.0 (H.R. 2008) wouldredirect approximately $320 million in existing, reserved and unused government funds from the Presidential Election Campaign Fund to the Gabriella Miller Kids First Pediatric Research Program. Under the direction of the National Institutes of Health, the funds would be used to develop a comprehensive shared-data resource for scientists researching hundreds of different pediatric cancers and structural birth defects and support the development of computational tools to analyze these large, complex genomic and clinical data sets. For a full text of the bill, CLICK HERE.

Why is it needed? Pediatric conditions, such as childhood cancers and birth defects, have profound, lifelong effects on patients and their families.

  • Each year, 15,780 children from birth to 19 will be diagnosed with cancer. Cancer is the leading cause of death by a disease in children.
  • One in 33 infants born in the United States has a birth defect. Birth defects are the leading cause of death during the first year of life and they account for half of all pediatric hospitalizations.

Current progress and next steps The Gabriella Miller Kids First Pediatric Research Program, created in 2014, is in the process of collecting genomic information on childhood cancers and structural birth defects. Under this program, more than a dozen pediatric research-focused laboratories have generated vital genomic data that will be shared with the entire research community to accelerate the development of prevention, early detection, and therapeutic interventions.

This is just the beginning. We need to expand this program to develop a comprehensive shared-data resource for scientists researching hundreds of different pediatric cancers and structural birth defects and support the development of computational tools to analyze these large, complex genomic and clinical data sets. For more information on the program, visit https://commonfund.nih.gov/KidsFirst

How can you help?

Download a copy of the Kids First 2.0 one page executive summary to use when speaking or writing  with your legislator. CLICK HERE

HR 2008 was introduced by Barbara Comstock [R-VA-10] on April 6, 2017.

2 cosponsors (2R)

Davis, Rodney [R-IL13] (joined Apr 6, 2017)

Harper, Gregg [R-MS3] (joined Apr 6, 2017)