DIPG Day May 17th each year

H. Res. 114  Designates May 17th of every year as National DIPG Day

H. Res. 114 is a resolution that expresses support for designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage the research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general. Diffuse intrinsic pontine glioma (DIPG) affects 200 to 400 children in the United States each year with certain regularity. There are all types of special days, shouldn’t our special children have a day that will call attention to our  unmet needs to find a cure for a disease that is fatal upon diagnosis?  Here’s a short, but informative video on DIPG.

1.UrgentStronger4Sq_edited-1The Office of the Speaker has been dismissive of the children represented in the DIPG Awareness Resolution which raises awareness for DIPG, pediatric brain cancer, and the urgent need for greater research funding for childhood cancer in general.  In order to get this resolution voted on we must have 218 cosponsors before the final session of Congress in December. We have 190 cosponsors and only need 28 more to get this resolution voted on. If we do not get it done this year before Congress adjourns, we will have to start all over again in January. It’s such a simple ask of the House of Representatives, there is no reason for them to not pass this. The Senate has passed it, but the House is not acting on it because it has not been brought up for a vote by the Speaker. We don’t have time! Our children are dying everyday. This is urgent! Please help!

LETTERS-1-1024x576_edited-1We have been asking the Speaker’s office to help get this resolution voted on by the House for several years and frankly feel they have no desire to deal with resolutions. If you would like to write the Speaker, that would be welcomed, but the best way to help would be to click on the “Urgent” photo above and help get cosponsors.

Letters to Leadership and Background Information:

Screen Shot 2020-11-25 at 1.38.13 PMAs we approach the end of 2020, the 116th Congress, and our 5th year of advocating for the National DIPG Awareness Resolution designated H. Res. 114, nearly 2000 more innocent children have endured a horrific, terrifying death since its first introduction. Our fledgling group of bereaved parents have managed to alert nearly 1⁄2 of the Membership of the House of Representatives to the deadly prevalence, not rarity, in the childhood cancer space of brain tumors like DIPG. Brain cancer is the #1 cause of death in children with cancer, and DIPG is responsible for the majority of brain tumor deaths in children, representing on its own a significant portion of the annual childhood cancer death toll. We desperately need help. There is nowhere in the world you can go to save your child from DIPG.  Read more here

190 Cosponsors (116D, 74R) Click Here for Complete List