DIPG Day May 17th each year

H. Res. 114  Designates May 17th of every year as National DIPG Day

H. Res 114 expresses support for designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage the research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general. Diffuse intrinsic pontine glioma (DIPG) affects 200 to 400 children in the United States each year with certain regularity. There are all types of special days, shouldn’t our special children have a day that will call attention to our  need to find a cure for a disease that is fatal upon diagnosis?

Introduced by Rep. Jackie Speier, (D-CA14),  this resolution is in the first stage of the legislative process. It was introduced into Congress on February 8, 2019. It will typically be considered by committee next before it is possibly sent on to the House or Senate as a whole.

Senator Marco Rubio introduced the resolution in the U.S. Senate and it passed on March 23, 2019 as S.Res. 223: A resolution expressing support for the designation of May 17, 2019, as “DIPG Pediatric Brain Cancer Awareness Day” to raise awareness of and encourage research on diffuse intrinsic pontine glioma tumors and pediatric cancers in general.

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The Resolution:

Expressing support for designation of the 17th day in May as “DIPG Awareness Day” to raise awareness and encourage the research into cures for diffuse intrinsic pontine glioma (DIPG) and pediatric cancers in general.
Whereas diffuse intrinsic pontine glioma (DIPG) affects 200 to 400 children in the United States each year with certain regularity;
Whereas brain tumors are the leading cause of cancer-related death in children;
Whereas DIPG is the second most common malignant brain tumor of childhood;
Whereas DIPG is the leading cause of childhood death due to brain tumors;
Whereas the median survival time is only 9 months post diagnosis with treatment;
Whereas 5-year survival is less than 1 percent;
Whereas given the age at diagnosis and the average life expectancy, the number of life years lost annually because of DIPG is approximately 25,000 years of person life lost (calculated as the number of children diagnosed by average of male and female life expectancy from that median age, 300 × 80 = 25,000 years of person life lost annually);
Whereas prognosis has not improved for children with DIPG in over 40 years; and
Whereas government funding for research for pediatric cancer as a singular designation has been represented by less than 4 percent of the National Cancer Institute budget in any given year: Now, therefore, be it
Resolved, That the House of Representatives—
(1) supports the designation of “DIPG Awareness Day”;
(2) encourages all people of the United States to become more informed about diffuse intrinsic pontine glioma (DIPG) pediatric brain cancer, and the current challenges to the medical research system in designating sufficient research funding for pediatric cancers;
(3) supports expanded research to better understand DIPG, develop effective treatments, and provide comprehensive care for children with DIPG and their families; and
(4) encourages the National Cancer Institute and other research funders to elevate their consideration of mortality rate of a type of cancer as well as the life years lost as significant factors considered during the grant application process.

Want to help?

Contact your Representative if they have not cosponsored and ask them to cosponsor Resolution H. Res. 114:

There are 47 cosponsors (30D, 17R)

Brownley, Julia [D-CA26] (joined Feb 8, 2019)
Butterfield, George “G.K.” [D-NC1] (joined Feb 8, 2019)
Cárdenas, Tony [D-CA29] (joined Feb 8, 2019)
Cohen, Steve [D-TN9] (joined Feb 8, 2019)
Dingell, Debbie [D-MI12] (joined Feb 8, 2019)
Fitzpatrick, Brian [R-PA1] (joined Feb 8, 2019)
Gabbard, Tulsi [D-HI2] (joined Feb 8, 2019)
Joyce, David [R-OH14] (joined Feb 8, 2019)
Kelly, Mike [R-PA16] (joined Feb 8, 2019)
Langevin, James “Jim” [D-RI2] (joined Feb 8, 2019)
McCaul, Michael [R-TX10] (joined Feb 8, 2019)
Raskin, Jamie [D-MD8] (joined Feb 8, 2019)
Schiff, Adam [D-CA28] (joined Feb 8, 2019)
Smith, Christopher “Chris” [R-NJ4] (joined Feb 8, 2019)
Soto, Darren [D-FL9] (joined Feb 8, 2019)
Stivers, Steve [R-OH15] (joined Feb 8, 2019)
Vela, Filemon [D-TX34] (joined Feb 8, 2019)
Higgins, Brian [D-NY26] (joined Feb 19, 2019)
Lipinski, Daniel [D-IL3] (joined Feb 19, 2019)
Lynch, Stephen [D-MA8] (joined Feb 19, 2019)
Tonko, Paul [D-NY20] (joined Feb 25, 2019)
Boyle, Brendan [D-PA2] (joined Mar 5, 2019)
Gallego, Ruben [D-AZ7] (joined Mar 5, 2019)
Napolitano, Grace [D-CA32] (joined Mar 5, 2019)
Rush, Bobby [D-IL1] (joined Mar 5, 2019)
Hill, Katie [D-CA25] (joined Mar 7, 2019)
Collins, Chris [R-NY27] (joined Mar 14, 2019)
McMorris Rodgers, Cathy [R-WA5] (joined Mar 14, 2019)
Waters, Maxine [D-CA43] (joined Mar 25, 2019)
Cisneros, Gilbert [D-CA39] (joined Apr 3, 2019)
Moulton, Seth [D-MA6] (joined Apr 25, 2019)
Flores, Bill [R-TX17] (joined May 1, 2019)
Meeks, Gregory [D-NY5] (joined May 2, 2019)

Wilson, Joe [R-SC2] (joined May 2, 2019

Duncan, Jeff [R-SC3] (joined May 7, 2019)

Crow, Jason [D-CO6] (joined May 8, 2019)

Pappas, Chris [D-NH1] (joined May 8, 2019

Calvert, Ken [R-CA42] (joined May 10, 2019)

Watkins, Steven [R-KS2] (joined May 10, 2019

Johnson, Henry “Hank” [D-GA4] (joined May 20, 2019)
Norman, Ralph [R-SC5] (joined May 20, 2019)

Sherman, Brad [D-CA30] (joined May 21, 201

Grijalva, Raúl [D-AZ3] (joined Jun 4, 2019)
Bergman, Jack [R-MI1] (joined Jun 19, 2019)
Neguse, Joe [D-CO2] (joined Jun 19, 2019)
King, Peter “Pete” [R-NY2] (joined Jun 25, 2019)
Marshall, Roger [R-KS1] (joined Jun 25, 2019)

Committee Assignments

The following Energy and Commerce Committee members have not cosponsored. If the committee passes the resolution, it will go to the floor to be voted on. Please tweet or call.
Representative                            State             District      Twitter Handle           Area Code 202
O’Halleran, Tom AZ 1st @RepOHalleran 225-3361
Eshoo, Anna G. CA 18th @RepAnnaEshoo 225-8104
Matsui, Doris O. CA 6th @DorisMatsui 225-7163
McNerney, Jerry CA 9th @RepMcNerney 225-1947
Peters, Scott H. CA 52d @RepScottPeters 225-0508
Ruiz, Raul CA 36th @CongressmanRuiz 225-5330
DeGette, Diana CO 1st @RepDianaDeGette 225-4431
Blunt Rochester, Lisa DE At Large @RepLBR 225-4165
Bilirakis, Gus M. FL 12th @RepGusBilirakis 225-5755
Castor, Kathy FL 14th @USRepKCastor 225-3376
Carter, Earl L. “Buddy” GA 1st @RepBuddyCarter 225-5831
Loebsack, David IA 2d @DaveLoebsack 225-6576
Kelly, Robin L. IL 2d @RepRobinKelly 225-0773
Kinzinger, Adam IL 16th @RepKinzinger 225-3635
Schakowsky, Janice D. IL 9th @JanSchakowsky 225-2111
Shimkus, John IL 15th @RepShimkus 225-5271
Brooks, Susan W. IN 5th @SusanWBrooks 225-2276
Bucshon, Larry IN 8th @RepLarryBucshon 225-4636
Guthrie, Brett KY 2d @RepGuthrie 225-3501
Scalise, Steve LA 1st @SteveScalise 225-3015
Kennedy, Joseph P., III MA 4th @RepJoeKennedy 225-5931
Sarbanes, John P. MD 3d @RepSarbanes 225-4016
Upton, Fred MI 6th @RepFredUpton 225-3761
Walberg, Tim MI 7th @RepWalberg 225-6276
Long, Billy MO 7th @USRepLong 225-6536
Gianforte, Greg MT At Large @GregForMontana 225-3211
Hudson, Richard NC 8th @RepRichHudson 225-3715
Kuster, Ann M. NH 2d @RepAnnieKuster 225-5206
Pallone, Frank, Jr. NJ 6th @FrankPallone 225-4671
Lujan, Ben Ray NM 3d @RepBenrayLujan 225-6316
Engel, Eliot L. NY 16th @RepEliotEngel 225-2464
Clarke, Yvette D. NY 9th @YvetteClarke 225-6231
Johnson, Bill OH 6th @RepBillJohnson 225-5705
Latta, Robert E. OH 5th @BobLatta 225-6405
Mullin, Markwayne OK 2d @RepMullin 225-2701
Schrader, Kurt OR 5th @RepSchrader 225-5711
Walden, Greg OR 2d @RepGregWalden 225-6730
Doyle, Michael F. PA 18th @USRepMikeDoyle 225-2135
Burgess, Michael C. TX 26th  @MichaelCBurgess 225-7772
Olson, Pete TX 22d @RepPeteOlson 225-4831
Veasey, Marc A. TX 33d @RepVeasey 225-9897
Griffith, H. Morgan VA 9th @RepMGriffith 225-3861
McEachin, A. Donald VA 4th @RepMcEachin 225-6365
Welch, Peter VT At Large @PeterWelch 225-4115
McKinley, David B. WV 1st @RepMcKinley 225-4172