September 2017 in our Capitol

SeptinWash_edited-1In our nation’s Capitol, September will be full of activities that will highlight the need for more medical research and opportunities for us to show that we are One Voice Against Childhood Cancer. Together, we are asking our government to make kids’ cancer a national priority.

Below is a schedule of activities that you may find interesting.  As additional information is received, this page will be updated weekly.

Also, available for your use, if you plan on attending,  is a Pocket Guide with map marking each activity and location.

Rally for Medical Research Hill Day Training Session and Reception

Wednesday, September 13, 2017,  3:00 pm to 4:30 pm, Training Session, Grand Hyatt, Wednesday, September 13, 2017, 5:30 pm to 7:30 pm, Reception, Dirksen Senate Office Building, Room G50

Screen Shot 2015-07-19 at 2.58.42 PMThe Rally for Medical Research is both a call to action for Congress to make medical research a national priority, and a means by which to raise awareness with the general public about the importance of continued investment in medical research through the National Institutes of Health.  The training session will be held at 3:00 p.m. in the Grand Hyatt Hotel, while the reception will be held in the Dirksen Senate Office Building, Room G50, at 5:30 p.m.. For more information, contact Mary Lee Watts (marylee.watts@aacr.org) or Jon Retzlaff (jon.retzlaff@aacr.org).  Register to attend here!

Thursday, September 14, 2017,  7:30 am to 4:30 pm

Rally for Medical Research Hill Day Kick Off Breakfast Program and Congressional Meetings on the Hill 

facebook-pictureBreakfast will be served at 7:30 a.m. at the Grand Hyatt Hotel followed by a short meeting. Meetings will be scheduled for participants with their individual Senators and Congressional Representatives. It’s a great opportunity to meet the people from your state and district that are representing you in Washington. This is your opportunity to let them know how valuable research is to you, your family, and our economy.  For more information, you may contact by email Mary Lee Watts (marylee.watts@aacr.org) or send email to Jon Retzlaff (jon.retzlaff@aacr.org). Register here to attend.

Space

Thursday, September 14, 2017   9 am to 10:30 am

Childhood Cancer Caucus Summit

U.S. Capitol Building, Washington D.C.The 2017 Congressional Childhood Cancer Caucus is a bipartisan caucus serving as a public policy clearinghouse for information on pediatric cancer and to be a forum for Members of Congress to work together to address this critical issue. The Caucus of over 100 congressional members strives to raise awareness about pediatric cancer, advocate in support of measures to prevent the pain, suffering and long-term effects of childhood cancers, and work toward the goal of eliminating cancer as a threat to all children. The event will be in the Congressional Auditorium, Capital Building Visitors Center. For more information, contact (Thomas.Hester@mail.house.gov)

Thursday, September 14, 2017   Noon

Alliance for Childhood Cancer Luncheon on Capitol Hill and Childhood Cancer Art Show

Thursday, September 14, 2017,  5:00 pm to 7:00 pm

A Golden Toast honoring  members of  The Congressional Childhood Cancer Caucus.

Toast

This is a invitation only event to be held at 1300 Longworth House Office Bldg. Room 1300 Washington, D.C.

The child friendly event marks the eighth year of the cancer caucus and will  honor the Congressmen and their staffs for the tireless work they have invested over the years.

Dress is business casual with a lot of emphasis on Golden accessories.  For more information, contact Annette Leslie (carrymecarson@gmail.com)

Thursday, September 14, 2017,  7:00 pm to 9:00 pm

Hyundai HopeHyundai Hope on Wheels Invitational Gala.

This invitational gala celebrates Hyundai’s commitment to childhood cancer research which exceeds $130 million to date. Some of the nations’s leading pediatric oncologists, policy makers, community members, guest speakers, and the childhood cancer survivors will be in attendance.

Friday, September 15, 2017,  9:00 am to 12:30 pm

Kids V Cancer Youth Lobby Day 

Kids V Cancer Youth Advocates will be meeting for lobby training skills on Capitol Hill, then spend the morning visiting Congressional offices on behalf of kids with cancer. Contact Jenn Flynn ( jenn@kidsvcancer.org) if interested in joining.

Friday, September 15, 2017,  5:00 pm to 7:00 pm

Coalition Against Childhood Cancer (CAC2) Invitational Welcome Reception.

In honor and memory of children with cancer and their families and in celebration of Childhood Cancer Awareness Month, the Coalition Against Childhood Cancer invites their members and friend to a  Welcome Reception at J.W. Marriott Hotel.   Registration 

Saturday, September 16, 2017  2:00 pm to 3:00 pm 

Rally’s #MoreThan4 Walk to Capitol

Screen Shot 2015-08-22 at 5.16.36 AMThis is an unofficial CureFest event that is being organized by Rally Foundation for Childhood Cancer Research. Here is a preliminary schedule:
Families will be meeting on Freedom Plaza to make signs and then walk to the U.S. Capitol and back. Freedom Plaza is located at the corner of 14th Street and Pennsylvania Avenue NW. The majority of rally participants will be attending the Welcome, Meet & Greed Event which begins at 5 p.m. at Freedom Plaza  where this Rally walk begins. Please RSVP with names of those attending to info@curefestdc.org. Rally is required to have a firm headcount for the rally.  This is very important.

Saturday, September 16, 2017   5:00 pm to 7:00 pm

CureFest Welcome Reception

A welcoming event the night before CureFest will be held at the Freedom Plaza, Washington, DC 20004. This family friendly event includes Packet Pick Up for the CureFest Walk, and some activities for children.

Saturday, September 16, 2017  7:00 pm to 10:00 pm

A Night of Golden Lights

Immediately following the Meet & Greet is a “A Night of Golden Lights.” also to be held at Freedom Plaza from 7:00 – 8:30 p.m. There will be live music and a speaking presentation. At 8:30 p.m. all attendees will walk to the White House for a candlelight vigil.

Night of Golden Lights is a CureFest candlelight rally to honor the children taken by cancer and all those still in the fight. Children, their families and advocates will walk from Freedom Plaza as a group and gather in front of the White House holding gold lights. The mission of the rally is to generate public awareness for childhood cancer. This event is open to the public and  is free to all participants.

Sunday, September 17, 2017  9:00 am

Bereavement Breakfast (new this year) at the J.W. Marriott for families that have lost a child to cancer.

Sunday, September 17, 2017  10 am to 3:00 pm

CureFest Events

CureFest is an annual festival in Washington, DC that is the key component of the growing childhood cancer movement. CureFest is held in the Nation’s Capital each September in an effort to make childhood cancer a national priority. It is an opportunity for the childhood cancer community, the general public and elected leaders to come together as One Voice against childhood cancer. The ultimate goal is safer treatments and better outcomes for children diagnosed with cancer.

Over 100 childhood cancer foundations and groups are expected to attend CureFest. Over 1,000 individuals have indicated they will be attending. It is a family-friendly event with activities for all ages. The event will include live music, entertainment, and various presentations by children and adults impacted by childhood cancer. Featured will be moving tributes for children who have or have had cancer. CureFest, again this year, will be held on  the Mall close to the U.S. Capitol. It is a very prominent location and is very close to public transportation, food vendors and public restrooms. Go to the CureFest Facebook   event page and sign up so you can be updated on all the information as it happens.

The Opening Celebration begins at 10:00 a.m. It is followed by a speaking program from 11:30 a.m. to 12 p.m.

Registration is now open for CureFest for Childhood Cancer 2017! Be a part of the growing childhood cancer movement and attend this important event in Washington, DC on September 16th and 17th.  Join the CureFest Walk. Go to www.curefestdc.org to register for all events.

For the forth time, CureFest will include a 3-mile walk beginning at 12:00 Noon on the National Mall. Participants will enjoy historic views of the U.S. Capitol, the Washington Monument, The World War II Memorial, The Lincoln Memorial and The White House.

The CureFest Walk is intended to increase the participation by the general public. Successful charity walks in the Washington-area typically start small but eventually attract several thousand participants within a few years of being established.

For more information about CureFest visit the CureFest web page.

This page will be updated every week, please check back for changes and additions.

 

Author: Joe Baber

This entry was posted in Cancer, Childhood Cancer, Pediatric Cancer, Rare Disease, Uncategorized, young adults and tagged , , , , , , , , , , , , , , . Bookmark the permalink.

One Response to September 2017 in our Capitol

  1. Pingback: Hope | Four-Square Clobbers Cancer

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